The aim of the research programme, FONDE, Following Outcomes in Newly Diagnosed Epilepsy, is to progress the current levels of understanding about the outcome and lifetime effects of epilepsy.
The key objectives are to monitor longterm pharmacological and social outcomes:
- under routine conditions of care
- in relation to a variety of prognostic factors
- across a broad range of clinical settings
Participating centres will collect and submit data electronically thereby building an international database of information ranging from epidemiological statistics, extent of seizure control and adverse effects to impact of epilepsy on everyday life. This project will provide prospective information on outcomes in newly diagnosed epilepsy across a range of seizure types and syndromes in a number of different ethnic and geographical settings. Patients who do not start on treatment can be included in the study and will provide invaluable data on the natural history of untreated epilepsy.
It is envisaged that these data will be used to improve management practices, and to support educational and public policy projects. The EUCARE Management Group will welcome suggestions for extension protocols and will evaluate them on a case by case basis.